Caring for a Spouse who has Huntington’s Disease

Huntington’s disease is a rare, inherited disease that causes the progressive breakdown (degeneration) of nerve cells in the brain; it has no cure. It has a broad impact on a person’s ability to function and usually results in movement, thinking (cognitive) and psychiatric disorders. Michael’s wife, Janet, was diagnosed with this disease 12 years ago at age 58 and he has been her care partner ever since.  Janet is now receiving hospice support and Michael talks very openly about the challenges of caring for someone with Huntington’s.

Join us for this interview with Michael who has many insights to offer regarding being a care partner to a terminally ill spouse.

Please follow Michael’s Blog, Reaching Out in Love.

Listen also to our podcast episode on Huntington’s Disease (Episode 34).

We hope you enjoy this interview.  If you have a story you want to tell on this program contact Dr. Matzo at  We would love to hear from you.

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Episode 16